About PEGASUS
PEGASUS was funded in 2004 by the NHS Sickle Cell and Thalassaemia Screening Programme acting on behalf of the National Screening Committee to develop education and training for health professionals involved in antenatal and newborn screening.
Professor Joe Kai, Chair in Primary Care at the University of Nottingham, led a collaboration of four NHS and academic institutions in the development and implementation of PEGASUS resources:
- University of Nottingham Division of Primary Care
- National Genetics Education and Development Centre in Birmingham
- Camden and Islington Sickle Cell and Thalassaemia Counselling Centre (Islington Primary Care Trust)
- Centre for Health Informatics and Multiprofessional Education (CHIME) at University College London
Contributions to PEGASUS resources
Front-line Professional Training and Resources
University of Nottingham Division of Primary Care
- Professor Joe Kai - principal author of online information, resources for trainers and front-line professionals
- Tracey George
- Fiona McInnes
- Hilda Parker
- Dr Nadeem Qureshi
- Pam Tarn
National Genetics Education and Development Centre
- Dr Catherine Bennett
- Olive Downer-Robinson
- Professor Peter Farndon
- Jo Haydon
- Dianne Marshall
- Lynne Mathers
- Dr Carole McKeown
- Members of the Birmingham Advisory Group not listed above (Sharon Hodgkiss; Glenda Augustine)
Centre for Health Informatics and Multiprofessional Education (CHIME) at University College London
- Matthew Darlison
- Professor Bernadette Modell
- Professor Michael Modell
- Sami Sibanda
Camden and Islington Sickle Cell and Thalassaemia Counselling Centre (Islington PCT)
- Dr Lorna Bennett
- Marjorie Ferguson
Peer review of front-line professional resources
PEGASUS resources for front-line professionals were peer reviewed by approximately 30 individuals which included advisors to the NHS Sickle Cell and Thalassaemia Screening Programme, Regional Screening Teams, clinicians, laboratory fora, academics, consumer and voluntary groups.
PEGASUS Specialist Practitioner Course
Course Director:
- Dr Lorna Bennett, National Lead for PEGASUS Specialist Training
Residential course facilitators:
- Professor Elizabeth Anionwu
- Verna Davis
- Marjorie Ferguson
Organisational support and coordination
- Tracey George
Module developers and course presenters:
- Dr Kofi Anie
- Nkechi Anyanwu
- Glenda Augustine
- Bernice Burton
- Dr Aamra Darr
- Susan Fairgrieve
- Dr Ying Foo
- Dr Peter Fuggle
- Pippa Gillham
- Professor Joe Kai
- Despina Karretti
- Dr Steve Krywawych
- Sarah Lunn
- Kate Mathieson
- Professor Bernadette Modell
- Professor Michael Modell
- Martha Muli
- Dr John Old
- Solomon Osinde
- Emma Prescott
- Dr Andrew Robins
- Siphosami Sibanda
- Ruth Stewart
- Dr Barbara Wild
- Dr Sarah Wilson
- Dr Anne Yardumian
Online resources for Public Health Professionals
Development of online resources:
- Dr Henrietta Ewart - lead author (briefing notes)
- Professor Bernadette Modell - lead author (epidemiological data and charts)
- Professor Joe Kai - specification of resources and piloting; Chair of Public Health Steering Group
Additional contributions:
- Matthew Darlison - online presentation, epidemiological data and charts
- Hilda Parker - piloting
- Dr Jean Chapple - audit tool
- Nadia Permalloo - audit tool
- Members of the Public Health Steering Group not listed above (Glenda Augustine; Dr Lorna Bennett; Dr Hilary Burton)
